An agreement that remains true to disabled people

Sue Bott
Sue Bott, Disability Rights UK
Added on
Refreshing Parthership

The partnership agreement needs to acknowledge the context in which public services are currently operating, namely severe cutbacks, and the impact that has on people who use services, or who no longer use services. The agreement needs to be seen to be real and true to the lives of disabled people, people with long term health conditions, older people, carers and families. Of course we, the TLAP partnership, cannot solve these issues on our own, but we can strive to get the best outcomes for as many people as we can.

I think there are four areas that TLAP should be concentrating on:

• Integration - integration of personal budgets across primarily health and social care but also exploring integration with areas such as employment, training and further and higher education

• Commissioning - looking at how services are commissioned including how people can commission their own services. This is key if personalisation is really to become a reality

• Information - looking at how people get information about personalisation. We have focused on getting information to professionals but what about directly to the public as well

• Support - looking at how people can be supported to make the most of personal budgets

Unfortunately - but perhaps inevitably - the management board has grown, and the partnership has contracted. I think TLAP need a smaller board, that meets less often, so that we can revert back to four meetings a year of the partnership. We should try to make sure that the partnership represents not just national organisations but includes representation from each region.


Posted on by Pam Quick

Thank you Sue for putting it so clearly and concisely. As a service user I am very forthright in saying what I need, but still people are ruling my life. Yes there is never a Gold Pot at the end of the rainbow, but at present the amount of money that is being flung at support for my long term condition after the treatment I was having was stable. Now they are paying more for something that I don't want. They have multi-disciplinary meeting about me but not with me. What an absolute waste of time!

Posted on by Old Site User

yes, they are ruling my life, constantly assessing some chronic condition which is not getting better. Managing and staffing the care package is difficult. Finding a very good PA means having a few shifts cxovered by her before she finds a care company that abuses her by keeping her 56 hours with 30 hours paid with a complex training, no contract and a month in hand...At least I pay her well, might I keep her? There is no forum for people receiving care. it is demoralising!

Posted on by Old Site User

Another one hits the dust! The lady mentioned above has left. Abused and not paid by a care company. Penalised for finding work by DWP; she had been told she would get only £5; we at the bottom of the dirt pile have to look after a budget and ourselves. It is depressing! The pressures we are under should be taken into account!

Posted on by Old Site User

Comments from Twitter

George Julian: Concerned that focus on integration will dilute really important work highlighted by Sue @DisRightsUK esp info to end users.

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